Czech Registry of Monoclonal Gammopathies – Technical Solution, Data Collection and Visualisation
Identifikátory výsledku
Kód výsledku v IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F65269705%3A_____%2F17%3A00067276" target="_blank" >RIV/65269705:_____/17:00067276 - isvavai.cz</a>
Nalezeny alternativní kódy
RIV/00216224:14110/17:00098160 RIV/61988987:17110/17:A1801R65 RIV/00179906:_____/17:10366877 RIV/00843989:_____/17:E0106562
Výsledek na webu
<a href="https://www.linkos.cz/files/klinicka-onkologie/425/5215.pdf" target="_blank" >https://www.linkos.cz/files/klinicka-onkologie/425/5215.pdf</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.14735/amko20172S43" target="_blank" >10.14735/amko20172S43</a>
Alternativní jazyky
Jazyk výsledku
angličtina
Název v původním jazyce
Czech Registry of Monoclonal Gammopathies – Technical Solution, Data Collection and Visualisation
Popis výsledku v původním jazyce
Background; The Registry of Monoclonal Gammopathies (RMG) was established by the Czech Myeloma Group in 2007. RMG is a registry designed for the collection of clinical data concerning diagnosis, treatment, treatment results and survival of patients with monoclonal gammopathies. Data on patients with monoclonal gammopathy of undetermined significance (MGUS), Waldenstrom macroglobulinaemia (WM), multiple myeloma (MM) or primary AL ("amyloid light-chain*) amyloidosis are collected in the registry. Data: Nineteen Czech centres and four Slovak centres currently contribute to the registry. The registry currently contains records on more than 5,000 patients with MM, almost 3,000 patients with MGUS, 170 patients with WM and 26 patients with primary AL amyloidosis, Le. more than 8,000 records on patients with monoclonal gammopathies altogether. fl((sufts;Thts paper describes technology employed for the collection, storage and subsequent online visualisation of data. The CLADE-tS platform is introduced as a new system for the collection and storage of data from the registry. The form structure and functions of the new system are described for all diagnoses in general; these functions facilitate data entry to the registry and minimise the error rate in data. Publicly available online visualisations of data on patients with MGUS, WM, MM or primary AL amyloidosis from all Czech or Slovak centres are introduced, together with authenticated visualisations of data on patients with MM from selected centres. Conclusion: The RMG represents a data basis that makes it possible to monitor the disease course in patients with monoclonal gammopathies on the population level.
Název v anglickém jazyce
Czech Registry of Monoclonal Gammopathies – Technical Solution, Data Collection and Visualisation
Popis výsledku anglicky
Background; The Registry of Monoclonal Gammopathies (RMG) was established by the Czech Myeloma Group in 2007. RMG is a registry designed for the collection of clinical data concerning diagnosis, treatment, treatment results and survival of patients with monoclonal gammopathies. Data on patients with monoclonal gammopathy of undetermined significance (MGUS), Waldenstrom macroglobulinaemia (WM), multiple myeloma (MM) or primary AL ("amyloid light-chain*) amyloidosis are collected in the registry. Data: Nineteen Czech centres and four Slovak centres currently contribute to the registry. The registry currently contains records on more than 5,000 patients with MM, almost 3,000 patients with MGUS, 170 patients with WM and 26 patients with primary AL amyloidosis, Le. more than 8,000 records on patients with monoclonal gammopathies altogether. fl((sufts;Thts paper describes technology employed for the collection, storage and subsequent online visualisation of data. The CLADE-tS platform is introduced as a new system for the collection and storage of data from the registry. The form structure and functions of the new system are described for all diagnoses in general; these functions facilitate data entry to the registry and minimise the error rate in data. Publicly available online visualisations of data on patients with MGUS, WM, MM or primary AL amyloidosis from all Czech or Slovak centres are introduced, together with authenticated visualisations of data on patients with MM from selected centres. Conclusion: The RMG represents a data basis that makes it possible to monitor the disease course in patients with monoclonal gammopathies on the population level.
Klasifikace
Druh
J<sub>SC</sub> - Článek v periodiku v databázi SCOPUS
CEP obor
—
OECD FORD obor
30204 - Oncology
Návaznosti výsledku
Projekt
—
Návaznosti
I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace
Ostatní
Rok uplatnění
2017
Kód důvěrnosti údajů
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Údaje specifické pro druh výsledku
Název periodika
Klinická onkologie
ISSN
0862-495X
e-ISSN
—
Svazek periodika
30
Číslo periodika v rámci svazku
Suppl. 2
Stát vydavatele periodika
CZ - Česká republika
Počet stran výsledku
8
Strana od-do
"2S43"-"2S50"
Kód UT WoS článku
—
EID výsledku v databázi Scopus
2-s2.0-85029524776