Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: the MyPal Approach

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F65269705%3A_____%2F19%3A00072626" target="_blank" >RIV/65269705:_____/19:00072626 - isvavai.cz</a>

Výsledek na webu

<a href="http://dx.doi.org/10.1109/BIBE.2019.00079" target="_blank" >http://dx.doi.org/10.1109/BIBE.2019.00079</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1109/BIBE.2019.00079" target="_blank" >10.1109/BIBE.2019.00079</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: the MyPal Approach

Popis výsledku v původním jazyce

Palliative care is offered along with primary treatment to improve the quality of life of the patient by relieving the symptoms and stress of a serious illness such as cancer. As per modern definitions, palliative care is appropriate at any age and at any stage of the illness, regardless of the eventual outcome. Patient-reported outcomes (PRO), i.e., health status measurements reported directly by the patients or their proxies, and especially their availability in electronic form (ePROs), are gradually gaining popularity as building blocks of innovative palliative care interventions. This paper presents MyPal, an EC-funded collaborative research project that aims to exploit advanced eHealth technologies to develop and evaluate two novel ePRO-based general palliative care interventions for cancer patients. In particular, the paper presents: (1) a short overview of MyPal; (2) the target populations, i.e., adults suffering from chronic lymphocytic leukemia (CLL) or myelodysplastic syndromes (AIDS), and children with solid or hematologic malignancies; (3) the ePRO-based interventions being designed for the target populations, (4) the eHealth platform for delivering the interventions under development, and (5) the international, multi-center clinical studies to be conducted for assessing these interventions, i.e., a randomized controlled trial (RCT) and an observational study for adults and children, respectively.

Název v anglickém jazyce

Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: the MyPal Approach

Popis výsledku anglicky

Palliative care is offered along with primary treatment to improve the quality of life of the patient by relieving the symptoms and stress of a serious illness such as cancer. As per modern definitions, palliative care is appropriate at any age and at any stage of the illness, regardless of the eventual outcome. Patient-reported outcomes (PRO), i.e., health status measurements reported directly by the patients or their proxies, and especially their availability in electronic form (ePROs), are gradually gaining popularity as building blocks of innovative palliative care interventions. This paper presents MyPal, an EC-funded collaborative research project that aims to exploit advanced eHealth technologies to develop and evaluate two novel ePRO-based general palliative care interventions for cancer patients. In particular, the paper presents: (1) a short overview of MyPal; (2) the target populations, i.e., adults suffering from chronic lymphocytic leukemia (CLL) or myelodysplastic syndromes (AIDS), and children with solid or hematologic malignancies; (3) the ePRO-based interventions being designed for the target populations, (4) the eHealth platform for delivering the interventions under development, and (5) the international, multi-center clinical studies to be conducted for assessing these interventions, i.e., a randomized controlled trial (RCT) and an observational study for adults and children, respectively.

Druh

D - Stať ve sborníku

CEP obor

—

OECD FORD obor

20602 - Medical laboratory technology (including laboratory samples analysis; diagnostic technologies) (Biomaterials to be 2.9 [physical characteristics of living material as related to medical implants, devices, sensors])

Projekt

—

Návaznosti

R - Projekt Ramcoveho programu EK

Rok uplatnění

2019

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název statě ve sborníku

2019 IEEE 19TH INTERNATIONAL CONFERENCE ON BIOINFORMATICS AND BIOENGINEERING (BIBE)

ISBN

978-1-72814-617-1

ISSN

2471-7819

e-ISSN

—

Počet stran výsledku

5

Strana od-do

405-409

Název nakladatele

IEEE

Místo vydání

NEW YORK

Místo konání akce

Athens

Datum konání akce

28. 10. 2019

Typ akce podle státní příslušnosti

WRD - Celosvětová akce

Kód UT WoS článku

000524679600070