Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F65269705%3A_____%2F21%3A00075861" target="_blank" >RIV/65269705:_____/21:00075861 - isvavai.cz</a>

Výsledek na webu

<a href="https://onlinelibrary.wiley.com/doi/10.1111/hae.14150" target="_blank" >https://onlinelibrary.wiley.com/doi/10.1111/hae.14150</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1111/hae.14150" target="_blank" >10.1111/hae.14150</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice

Popis výsledku v původním jazyce

Comprehensive care for people with haemophilia (PWH) is endorsed by the World Federation of Haemophilia (WFH), and it is now the preferred model of care provision for people with inherited bleeding disorders. This overarching approach to care provision is both a rapid acute service as well as a preventive medicine approach and has proven successful in terms of outcomes related to morbidity and mortality, quality of life and general health, even with the associated higher costs for the expertise required.1 Centres should have specialist haematologists/paediatricians, specialist nurse and physiotherapists, 24-hour laboratory and clinical support, as well as access to specialist orthopaedics, dental and HIV/hepatology services. The WFH describes physiotherapy for PWH as being a lifelong requirement, whereby assessment, education and treatment are provided for acute bleeds and chronic musculoskeletal (MSK) complications with a range of physical medicine techniques. This description serves only to describe physiotherapy as an intervention. The World Confederation of Physical Therapy describes the &apos;profession&apos; of physiotherapy as the interaction between the physiotherapist (individual), patients/clients, other health professionals, families, care givers and communities in a process where movement potential is assessed and goals are agreed upon using knowledge and skills unique to physiotherapists.2 It would appear that the full set of competencies of the physiotherapist are not being recognized or utilized in haemophilia treatment centres.

Název v anglickém jazyce

Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice

Popis výsledku anglicky

Comprehensive care for people with haemophilia (PWH) is endorsed by the World Federation of Haemophilia (WFH), and it is now the preferred model of care provision for people with inherited bleeding disorders. This overarching approach to care provision is both a rapid acute service as well as a preventive medicine approach and has proven successful in terms of outcomes related to morbidity and mortality, quality of life and general health, even with the associated higher costs for the expertise required.1 Centres should have specialist haematologists/paediatricians, specialist nurse and physiotherapists, 24-hour laboratory and clinical support, as well as access to specialist orthopaedics, dental and HIV/hepatology services. The WFH describes physiotherapy for PWH as being a lifelong requirement, whereby assessment, education and treatment are provided for acute bleeds and chronic musculoskeletal (MSK) complications with a range of physical medicine techniques. This description serves only to describe physiotherapy as an intervention. The World Confederation of Physical Therapy describes the &apos;profession&apos; of physiotherapy as the interaction between the physiotherapist (individual), patients/clients, other health professionals, families, care givers and communities in a process where movement potential is assessed and goals are agreed upon using knowledge and skills unique to physiotherapists.2 It would appear that the full set of competencies of the physiotherapist are not being recognized or utilized in haemophilia treatment centres.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

30205 - Hematology

Projekt

—

Návaznosti

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Rok uplatnění

2021

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Haemophilia

ISSN

1351-8216

e-ISSN

—

Svazek periodika

27

Číslo periodika v rámci svazku

2

Stát vydavatele periodika

US - Spojené státy americké

Počet stran výsledku

3

Strana od-do

"E284"-"E286"

Kód UT WoS článku

000574764200001

EID výsledku v databázi Scopus

2-s2.0-85092114974