European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00064203%3A_____%2F14%3A10292993" target="_blank" >RIV/00064203:_____/14:10292993 - isvavai.cz</a>

Nalezeny alternativní kódy

RIV/00216208:11130/14:10292993

Výsledek na webu

<a href="http://dx.doi.org/10.1016/j.jcf.2014.03.009" target="_blank" >http://dx.doi.org/10.1016/j.jcf.2014.03.009</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1016/j.jcf.2014.03.009" target="_blank" >10.1016/j.jcf.2014.03.009</a>

Jazyk výsledku

angličtina

Název v původním jazyce

European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre

Popis výsledku v původním jazyce

A significant increase in life expectancy in successive birth cohorts of people with cystic fibrosis (CF) is a result of more effective treatment for the disease. It is also now widely recognized that outcomes for patients cared for in specialist CF Centres are better than for those who are not. Key to the effectiveness of the specialist CF Centre is the multidisciplinary team (MDT), which should include consultants, clinical nurse specialist, microbiologist, physiotherapist, dietitian, pharmacist, clinical psychologist, social worker, clinical geneticist and allied healthcare professionals, all of whom should be experienced in CF care. Members of the MDT are also expected to keep up to date with developments in CF through continued professional development, attendance at conferences, auditing and involvement in research. Specialists CF Centres should also network with other Centres both nationally and internationally, and feed Centre data to registries in order to further the understa

Název v anglickém jazyce

European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre

Popis výsledku anglicky

A significant increase in life expectancy in successive birth cohorts of people with cystic fibrosis (CF) is a result of more effective treatment for the disease. It is also now widely recognized that outcomes for patients cared for in specialist CF Centres are better than for those who are not. Key to the effectiveness of the specialist CF Centre is the multidisciplinary team (MDT), which should include consultants, clinical nurse specialist, microbiologist, physiotherapist, dietitian, pharmacist, clinical psychologist, social worker, clinical geneticist and allied healthcare professionals, all of whom should be experienced in CF care. Members of the MDT are also expected to keep up to date with developments in CF through continued professional development, attendance at conferences, auditing and involvement in research. Specialists CF Centres should also network with other Centres both nationally and internationally, and feed Centre data to registries in order to further the understa

Druh

J_x - Nezařazeno - Článek v odborném periodiku (Jimp, Jsc a Jost)

CEP obor

EB - Genetika a molekulární biologie

OECD FORD obor

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Projekt

—

Návaznosti

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Rok uplatnění

2014

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Journal of Cystic Fibrosis

ISSN

1569-1993

e-ISSN

—

Svazek periodika

13

Číslo periodika v rámci svazku

Supplement 1

Stát vydavatele periodika

NL - Nizozemsko

Počet stran výsledku

20

Strana od-do

"S3"-"S22"

Kód UT WoS článku

000338814100002

EID výsledku v databázi Scopus

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