Differences in attitudes to ethics aspects of end of life care among patients with progressive neurological diseases and their family members

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61988987%3A17110%2F19%3AA20023IO" target="_blank" >RIV/61988987:17110/19:A20023IO - isvavai.cz</a>

Výsledek na webu

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DOI - Digital Object Identifier

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Jazyk výsledku

angličtina

Název v původním jazyce

Differences in attitudes to ethics aspects of end of life care among patients with progressive neurological diseases and their family members

Popis výsledku v původním jazyce

The aim of the research was to determine differences in attitudes to ethics aspects of end of life care among patients with progressive neurological diseases (PND) and their family member. The attitudes were assessed with APND-EoLC questionnaire (The Attitudes of Patients with PND to End-of- Life Care). This cross-sectional study comprised 188 participants, patients with PND (multiple sclerosis, Parkinson disease, Huntington disease) from the Czech Republic and their family member. There were significant differences (paired Wilcoxon test) in the domains “control over end of life” (p=0.0002; patient’s score: mean=73.6; SD=15.0; families’ score: mean=67.1; SD=16.4) and “keeping patients alive” (p=0.0001; patient’s score: mean=61.9; SD=16.2; families’ score: mean=68.5; SD=15.4).

Název v anglickém jazyce

Differences in attitudes to ethics aspects of end of life care among patients with progressive neurological diseases and their family members

Popis výsledku anglicky

The aim of the research was to determine differences in attitudes to ethics aspects of end of life care among patients with progressive neurological diseases (PND) and their family member. The attitudes were assessed with APND-EoLC questionnaire (The Attitudes of Patients with PND to End-of- Life Care). This cross-sectional study comprised 188 participants, patients with PND (multiple sclerosis, Parkinson disease, Huntington disease) from the Czech Republic and their family member. There were significant differences (paired Wilcoxon test) in the domains “control over end of life” (p=0.0002; patient’s score: mean=73.6; SD=15.0; families’ score: mean=67.1; SD=16.4) and “keeping patients alive” (p=0.0001; patient’s score: mean=61.9; SD=16.2; families’ score: mean=68.5; SD=15.4).

Druh

D - Stať ve sborníku

CEP obor

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OECD FORD obor

30304 - Public and environmental health

Projekt

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Návaznosti

V - Vyzkumna aktivita podporovana z jinych verejnych zdroju

Rok uplatnění

2019

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název statě ve sborníku

Journal of the Neurological Sciences

ISBN

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ISSN

0022-510X

e-ISSN

1878-5883

Počet stran výsledku

405

Strana od-do

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Název nakladatele

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Místo vydání

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Místo konání akce

Dubaj

Datum konání akce

27. 10. 2019

Typ akce podle státní příslušnosti

EUR - Evropská akce

Kód UT WoS článku

000516770701507