The attitudes of progressive neurological disease patients and their family members to end of life care: a cross-sectional study

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00843989%3A_____%2F22%3AE0109569" target="_blank" >RIV/00843989:_____/22:E0109569 - isvavai.cz</a>

Nalezeny alternativní kódy

RIV/61988987:17110/20:A22025Z6

Výsledek na webu

<a href="https://journals.sagepub.com/doi/10.1177/0030222820936922" target="_blank" >https://journals.sagepub.com/doi/10.1177/0030222820936922</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1177/0030222820936922" target="_blank" >10.1177/0030222820936922</a>

Jazyk výsledku

angličtina

Název v původním jazyce

The attitudes of progressive neurological disease patients and their family members to end of life care: a cross-sectional study

Popis výsledku v původním jazyce

The objective was to identify the attitudes of progressive neurological disease (PND) patients and their family members regarding end-of-life care, and their worries about dying. The sample included 327 participants. The Attitudes of Patients with PND to End-of-Life Care questionnaire was used to collect the data. Statistically significant differences in the assessment of attitudes towards end-of-life care between patients and family members were identified (p < 0.001). Family members more frequently favored patients being kept alive at any cost; patients more commonly wished to have their end of life under control. Respondents most frequently deferred to doctors when it came to decisions on treatment to keep patients alive. However, both patients and family members wanted patients to be able to decide on their treatment by leaving a written record of their previously stated wishes. The demands of patients and their families regarding end-of-life care should be documented in individual care plans.

Název v anglickém jazyce

The attitudes of progressive neurological disease patients and their family members to end of life care: a cross-sectional study

Popis výsledku anglicky

The objective was to identify the attitudes of progressive neurological disease (PND) patients and their family members regarding end-of-life care, and their worries about dying. The sample included 327 participants. The Attitudes of Patients with PND to End-of-Life Care questionnaire was used to collect the data. Statistically significant differences in the assessment of attitudes towards end-of-life care between patients and family members were identified (p < 0.001). Family members more frequently favored patients being kept alive at any cost; patients more commonly wished to have their end of life under control. Respondents most frequently deferred to doctors when it came to decisions on treatment to keep patients alive. However, both patients and family members wanted patients to be able to decide on their treatment by leaving a written record of their previously stated wishes. The demands of patients and their families regarding end-of-life care should be documented in individual care plans.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

30210 - Clinical neurology

Projekt

<a href="/cs/project/NV17-29447A" target="_blank" >NV17-29447A: NEUROPALIATIVNÍ A REHABILITAČNÍ PŘÍSTUP PRO ZACHOVÁNÍ KVALITY ŽIVOTA PACIENTŮ V POKROČILÉ FÁZI VYBRANÝCH NEUROLOGICKÝCH ONEMOCNĚNÍ</a><br>

Návaznosti

P - Projekt vyzkumu a vyvoje financovany z verejnych zdroju (s odkazem do CEP)

Rok uplatnění

2022

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

OMEGA - Journal of death and dying

ISSN

0030-2228

e-ISSN

1541-3764

Svazek periodika

85

Číslo periodika v rámci svazku

1

Stát vydavatele periodika

US - Spojené státy americké

Počet stran výsledku

19

Strana od-do

4-22

Kód UT WoS článku

000542824900001

EID výsledku v databázi Scopus

2-s2.0-85086775111