Fear of dying related to Parkinson´s disease: patients and family members

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61988987%3A17110%2F19%3AA20023IR" target="_blank" >RIV/61988987:17110/19:A20023IR - isvavai.cz</a>

Výsledek na webu

<a href="https://www.jns-journal.com/action/showPdf?pii=S0022-510X%2819%2931601-6" target="_blank" >https://www.jns-journal.com/action/showPdf?pii=S0022-510X%2819%2931601-6</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1016/j.jns.2019.10.1127" target="_blank" >10.1016/j.jns.2019.10.1127</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Fear of dying related to Parkinson´s disease: patients and family members

Popis výsledku v původním jazyce

Over the past 10 years, there has been an increasing interest in the provision of quality end-of-life care for patients with Parkinson's disease (PD) [1, 2]. The aim of the research was to identify fear of dying in Parkinson’s patients (PD) and their family members and compare reasons of fear according to sociodemographic characteristics and patients’ health status. The fear of dying was assessed with APND-EoLC questionnaire (Attitudes of Patients with Progressive Neurological Disease to End-of- Life Care, part Fear of Dying – 9 items). The sample consisted of 134 participants, patients with PD (mean age: 71.4 year) and their family members (mean age: 60.3) from the Czech Republic. Patients reported to have a greater fear (p < 0.0001) in the domain “Dependence/Loss of control” (mean = 79.1, 95%CI: 74.6–83.6) than in the domain “One’s own suffering” (mean = 69.3, 95%CI: 64.6–74.0). Patients worried most about “Being a burden to others” (mean = 8.2, SD = 2.2), this was most often true for widowers (p = 0.024) and patients without a care allowance (p = 0.006). On the other hand, family members (p = 0.002) were more afraid of suffering of their significant other during dying (mean = 79.3, 95%CI: 74.9–83.7) than of “Dependence/Loss of control” (mean = 71.9, 95%CI: 66.3–77.4). Family members feared most “fear of severe pain during dying” (mean = 9.1, SD = 1.6). Family members of patients without a care allowance more often feared of dependence and loss of control (p = 0.031). Fear of suffering during dying was indicated more often by patients’ children rather than their life partners (p = 0.021). Other differences were not found as significant. In the light of the emotive impact of PD in both patients and caregivers, one recommendation is for clinicians to elicit more information about feelings, such as fear of dying.

Název v anglickém jazyce

Fear of dying related to Parkinson´s disease: patients and family members

Popis výsledku anglicky

Over the past 10 years, there has been an increasing interest in the provision of quality end-of-life care for patients with Parkinson's disease (PD) [1, 2]. The aim of the research was to identify fear of dying in Parkinson’s patients (PD) and their family members and compare reasons of fear according to sociodemographic characteristics and patients’ health status. The fear of dying was assessed with APND-EoLC questionnaire (Attitudes of Patients with Progressive Neurological Disease to End-of- Life Care, part Fear of Dying – 9 items). The sample consisted of 134 participants, patients with PD (mean age: 71.4 year) and their family members (mean age: 60.3) from the Czech Republic. Patients reported to have a greater fear (p < 0.0001) in the domain “Dependence/Loss of control” (mean = 79.1, 95%CI: 74.6–83.6) than in the domain “One’s own suffering” (mean = 69.3, 95%CI: 64.6–74.0). Patients worried most about “Being a burden to others” (mean = 8.2, SD = 2.2), this was most often true for widowers (p = 0.024) and patients without a care allowance (p = 0.006). On the other hand, family members (p = 0.002) were more afraid of suffering of their significant other during dying (mean = 79.3, 95%CI: 74.9–83.7) than of “Dependence/Loss of control” (mean = 71.9, 95%CI: 66.3–77.4). Family members feared most “fear of severe pain during dying” (mean = 9.1, SD = 1.6). Family members of patients without a care allowance more often feared of dependence and loss of control (p = 0.031). Fear of suffering during dying was indicated more often by patients’ children rather than their life partners (p = 0.021). Other differences were not found as significant. In the light of the emotive impact of PD in both patients and caregivers, one recommendation is for clinicians to elicit more information about feelings, such as fear of dying.

Druh

D - Stať ve sborníku

CEP obor

—

OECD FORD obor

50100 - Psychology and cognitive sciences

Projekt

—

Návaznosti

V - Vyzkumna aktivita podporovana z jinych verejnych zdroju

Rok uplatnění

2019

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název statě ve sborníku

Neurological Sciences

ISBN

—

ISSN

0022-510X

e-ISSN

1878-5883

Počet stran výsledku

1

Strana od-do

—

Název nakladatele

—

Místo vydání

—

Místo konání akce

Dubaj

Datum konání akce

27. 10. 2019

Typ akce podle státní příslušnosti

WRD - Celosvětová akce

Kód UT WoS článku

000516770700340