Fostering “digital subjectivity”: An investigation of digital health narratives in Norway, the Netherlands and Czechia

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15260%2F21%3A73609859" target="_blank" >RIV/61989592:15260/21:73609859 - isvavai.cz</a>

Výsledek na webu

<a href="https://obd.upol.cz/id_publ/333189746" target="_blank" >https://obd.upol.cz/id_publ/333189746</a>

DOI - Digital Object Identifier

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Jazyk výsledku

angličtina

Název v původním jazyce

Fostering “digital subjectivity”: An investigation of digital health narratives in Norway, the Netherlands and Czechia

Popis výsledku v původním jazyce

To be able to tell the story of your illness, as well as relating to the stories of others, has always been important in people’s subjective handling of illness. In the digital age, this practice is extended to the Internet. Today there are various resources offering people possibilities to share and access health and illness narratives online. In this chapter we will look into empirical material from one particular resource, the researcher-driven national sites of DIPEx International. Based on empirical accounts from patients who have shared their narratives on the sites as well as those of its users, we provide insight into what digital health narratives might mean to people who are actually experiencing health challenges. The analysis exposes three core aspects of subjective illness formation that were related to the digital narratives: embodiment, normality and language. Approaching our empirical data through the theoretical lens of “digital subjectivity” allows for an understanding that moves beyond the conceptualisation of digital narratives as instrumental for information sharing only. Furthermore, the perspective also highlights how the distinction between online and offline practices is less relevant or fruitful when considering subjective formations of illness in contemporary society.

Název v anglickém jazyce

Fostering “digital subjectivity”: An investigation of digital health narratives in Norway, the Netherlands and Czechia

Popis výsledku anglicky

To be able to tell the story of your illness, as well as relating to the stories of others, has always been important in people’s subjective handling of illness. In the digital age, this practice is extended to the Internet. Today there are various resources offering people possibilities to share and access health and illness narratives online. In this chapter we will look into empirical material from one particular resource, the researcher-driven national sites of DIPEx International. Based on empirical accounts from patients who have shared their narratives on the sites as well as those of its users, we provide insight into what digital health narratives might mean to people who are actually experiencing health challenges. The analysis exposes three core aspects of subjective illness formation that were related to the digital narratives: embodiment, normality and language. Approaching our empirical data through the theoretical lens of “digital subjectivity” allows for an understanding that moves beyond the conceptualisation of digital narratives as instrumental for information sharing only. Furthermore, the perspective also highlights how the distinction between online and offline practices is less relevant or fruitful when considering subjective formations of illness in contemporary society.

Druh

C - Kapitola v odborné knize

CEP obor

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OECD FORD obor

30304 - Public and environmental health

Projekt

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Návaznosti

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Rok uplatnění

2021

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název knihy nebo sborníku

Navigating digital health landscapes

ISBN

978-981-15-8205-9

Počet stran výsledku

20

Strana od-do

107-126

Počet stran knihy

321

Název nakladatele

Palgrave Macmillan

Místo vydání

Singapur

Kód UT WoS kapitoly

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