End-of-life and dying of people with disabilities – conceptualization, topics, specifics

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F18%3A73589347" target="_blank" >RIV/61989592:15410/18:73589347 - isvavai.cz</a>

Výsledek na webu

<a href="http://dx.doi.org/10.5593/sgemsocial2018/3.2/S11.016" target="_blank" >http://dx.doi.org/10.5593/sgemsocial2018/3.2/S11.016</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.5593/sgemsocial2018/3.2/S11.016" target="_blank" >10.5593/sgemsocial2018/3.2/S11.016</a>

Jazyk výsledku

angličtina

Název v původním jazyce

End-of-life and dying of people with disabilities – conceptualization, topics, specifics

Popis výsledku v původním jazyce

Accompanying people with disabilities (PwD) throughout the end-of-life and dying is an important topic in many scientific and study fields. On the basis of a literary research it can be stated that this topic is being relatively neglected in published studies covering rather recurrent themes. PwD have specific needs, require specific access and means of communication, etc. The found published studies have focused on the end-of-life period predominantly in people with mental retardation and cognitive disabilities from childhood to old age. End-of-life accompanied by a number of symptoms calls for a specialized approach as well as high-quality care provided by the staff (and caregivers). Therefore, defining adequately the end-of-life specifics of PwD is necessary. The aim of the paper is to describe the end-of-life and dying of PwD, to define the topics in this area and to describe the needs of this highly specific target group of people (clients) living either in a home or an institutional environment. Since qualitative studies provide valuable research findings, a review of already published meta-syntheses of end-of-life in dying PwD will also be a part of the paper. The paper of a review character used an interpretative content analysis method, studying of the scientific knowledge (available in databases) and a comparison process with an emphasis on partial preparation phases of a review study. The paper could be used as the fulfillment the gap in the research area for the above-mentioned topic of research and application activities.

Název v anglickém jazyce

End-of-life and dying of people with disabilities – conceptualization, topics, specifics

Popis výsledku anglicky

Accompanying people with disabilities (PwD) throughout the end-of-life and dying is an important topic in many scientific and study fields. On the basis of a literary research it can be stated that this topic is being relatively neglected in published studies covering rather recurrent themes. PwD have specific needs, require specific access and means of communication, etc. The found published studies have focused on the end-of-life period predominantly in people with mental retardation and cognitive disabilities from childhood to old age. End-of-life accompanied by a number of symptoms calls for a specialized approach as well as high-quality care provided by the staff (and caregivers). Therefore, defining adequately the end-of-life specifics of PwD is necessary. The aim of the paper is to describe the end-of-life and dying of PwD, to define the topics in this area and to describe the needs of this highly specific target group of people (clients) living either in a home or an institutional environment. Since qualitative studies provide valuable research findings, a review of already published meta-syntheses of end-of-life in dying PwD will also be a part of the paper. The paper of a review character used an interpretative content analysis method, studying of the scientific knowledge (available in databases) and a comparison process with an emphasis on partial preparation phases of a review study. The paper could be used as the fulfillment the gap in the research area for the above-mentioned topic of research and application activities.

Druh

D - Stať ve sborníku

CEP obor

—

OECD FORD obor

50302 - Education, special (to gifted persons, those with learning disabilities)

Projekt

—

Návaznosti

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Rok uplatnění

2018

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název statě ve sborníku

5th International Multidisciplinary Scientific Conference on Social Sciences and Arts SGEM 2018

ISBN

978-619-7408-54-6

ISSN

2367-5659

e-ISSN

2367-5659

Počet stran výsledku

6

Strana od-do

115-120

Název nakladatele

STEF92 Technology Ltd.

Místo vydání

Sofia

Místo konání akce

Albena

Datum konání akce

26. 8. 2018

Typ akce podle státní příslušnosti

WRD - Celosvětová akce

Kód UT WoS článku

—