End-of-life and dying in persons with intellectual disabilities: implications for counseling, education and support

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F19%3A73594882" target="_blank" >RIV/61989592:15410/19:73594882 - isvavai.cz</a>

Výsledek na webu

<a href="https://docs.wixstatic.com/ugd/32dbef_7f0a2551a30f4212ad55ec2380b60f0e.pdf?index=true" target="_blank" >https://docs.wixstatic.com/ugd/32dbef_7f0a2551a30f4212ad55ec2380b60f0e.pdf?index=true</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.32008/NORDSCI2019/B1/V2" target="_blank" >10.32008/NORDSCI2019/B1/V2</a>

Jazyk výsledku

angličtina

Název v původním jazyce

End-of-life and dying in persons with intellectual disabilities: implications for counseling, education and support

Popis výsledku v původním jazyce

People with intellectual disabilities (ID) generally have a shorter lifespan, but the duration of quality life is becoming more and more extended. That is why supportive, holistically-oriented palliative care is also gaining in importance in the period when a client with ID is dying, or is in the end-of-life stage of life. Although recent years have seen a steady increase in published surveillance and theoretical studies, empirical data about the needs of palliative care for people with ID are still rather rare. Most of the staff working in the health, social, and other service sectors are confronted with the difficulty of caring for, the approach to be taken to, and communication with people with ID. These people need adequate support in the topics of death, dying, accompanying and mourning. People engaged in the helping professions should not deliberately avoid these topics, but, on the contrary, become initiators of open, clear, and objective communication heading towards the greatest possible extent of help and support to people with ID. At the same time, it is a huge demand for education and a great challenge for the pre-graduate and professional training of helping professions.

Název v anglickém jazyce

End-of-life and dying in persons with intellectual disabilities: implications for counseling, education and support

Popis výsledku anglicky

People with intellectual disabilities (ID) generally have a shorter lifespan, but the duration of quality life is becoming more and more extended. That is why supportive, holistically-oriented palliative care is also gaining in importance in the period when a client with ID is dying, or is in the end-of-life stage of life. Although recent years have seen a steady increase in published surveillance and theoretical studies, empirical data about the needs of palliative care for people with ID are still rather rare. Most of the staff working in the health, social, and other service sectors are confronted with the difficulty of caring for, the approach to be taken to, and communication with people with ID. These people need adequate support in the topics of death, dying, accompanying and mourning. People engaged in the helping professions should not deliberately avoid these topics, but, on the contrary, become initiators of open, clear, and objective communication heading towards the greatest possible extent of help and support to people with ID. At the same time, it is a huge demand for education and a great challenge for the pre-graduate and professional training of helping professions.

Druh

D - Stať ve sborníku

CEP obor

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OECD FORD obor

50302 - Education, special (to gifted persons, those with learning disabilities)

Projekt

—

Návaznosti

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Rok uplatnění

2019

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název statě ve sborníku

NORDSCI International Conference on Social Sciences: Conference Proceedings

ISBN

978-619-7495-05-8

ISSN

2603-4107

e-ISSN

2603-4107

Počet stran výsledku

10

Strana od-do

269-278

Název nakladatele

Saima Consult LTD

Místo vydání

Sofia

Místo konání akce

Athens

Datum konání akce

19. 8. 2019

Typ akce podle státní příslušnosti

WRD - Celosvětová akce

Kód UT WoS článku

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