Personal Assistance to People with ASD in Czechia: Between Positive Discrimination and Ableism.

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216224%3A14410%2F19%3A00112631" target="_blank" >RIV/00216224:14410/19:00112631 - isvavai.cz</a>

Výsledek na webu

<a href="https://jsps.hse.ru/index.php/jsps/article/view/10224" target="_blank" >https://jsps.hse.ru/index.php/jsps/article/view/10224</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.17323/727-0634-2019-17-4-629-642" target="_blank" >10.17323/727-0634-2019-17-4-629-642</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Personal Assistance to People with ASD in Czechia: Between Positive Discrimination and Ableism.

Popis výsledku v původním jazyce

Contemporary politics concerning those with Autism Spectrum Disorder (ASD) revolves around a contest between the medical perspective of autism as a pathology in need of a cure and the autism acceptance perspective, which maintains that autism is a normal human variation. Neither of these extremes provides a sustainable solution to the dilemma of empowerment and care for the people with ASD. Even more, each of the extremes runs the risk of reproducing ableism, a cultural status quo that privileges an able-bodied 'norm' and re-establishes hierarchies of ability upon people with ASD. The call for personal assistance, a pillar of independent life for people with disabilities, reframes the policy of the individual approach for people with ASD by ensuring better continuity between assessment and intervention. The current Czech policy concerning people with disabilities remains aligned with the approach introduced in the late 1980s that divides people with disabilities into categories according to the degree of their dependence instead of refining the approach in line with needs assessment and individualizing interventions. How do different actors respond to the obvious lack of personal assistance to people with ASD? This article examines the impact of governmental bodies responsible for disability policy, the regional authorities and civil society actors on reproducing post-socialist path dependence on medicalised assessment, the centralised approach to funding, and the univocity with residential care. We apply the 'Assessing Personal Assistance Schemes', a multi-faceted set of criteria aimed at monitoring the right to independent life, for indicating options concerning sustainable switching to personal assistance

Název v anglickém jazyce

Personal Assistance to People with ASD in Czechia: Between Positive Discrimination and Ableism.

Popis výsledku anglicky

Contemporary politics concerning those with Autism Spectrum Disorder (ASD) revolves around a contest between the medical perspective of autism as a pathology in need of a cure and the autism acceptance perspective, which maintains that autism is a normal human variation. Neither of these extremes provides a sustainable solution to the dilemma of empowerment and care for the people with ASD. Even more, each of the extremes runs the risk of reproducing ableism, a cultural status quo that privileges an able-bodied 'norm' and re-establishes hierarchies of ability upon people with ASD. The call for personal assistance, a pillar of independent life for people with disabilities, reframes the policy of the individual approach for people with ASD by ensuring better continuity between assessment and intervention. The current Czech policy concerning people with disabilities remains aligned with the approach introduced in the late 1980s that divides people with disabilities into categories according to the degree of their dependence instead of refining the approach in line with needs assessment and individualizing interventions. How do different actors respond to the obvious lack of personal assistance to people with ASD? This article examines the impact of governmental bodies responsible for disability policy, the regional authorities and civil society actors on reproducing post-socialist path dependence on medicalised assessment, the centralised approach to funding, and the univocity with residential care. We apply the 'Assessing Personal Assistance Schemes', a multi-faceted set of criteria aimed at monitoring the right to independent life, for indicating options concerning sustainable switching to personal assistance

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

50302 - Education, special (to gifted persons, those with learning disabilities)

Projekt

—

Návaznosti

S - Specificky vyzkum na vysokych skolach

Rok uplatnění

2019

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Journal of social policy studies

ISSN

1727-0634

e-ISSN

1727-0634

Svazek periodika

17

Číslo periodika v rámci svazku

4

Stát vydavatele periodika

RU - Ruská federace

Počet stran výsledku

14

Strana od-do

629-642

Kód UT WoS článku

000515794800010

EID výsledku v databázi Scopus

2-s2.0-85078502199