Experiences of Mothers of Children with Profound Intellectual and Multiple Disabilities in the Czech Republic

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F22%3A73610273" target="_blank" >RIV/61989592:15410/22:73610273 - isvavai.cz</a>

Nalezeny alternativní kódy

RIV/00216224:14110/23:00130252

Výsledek na webu

<a href="https://onlinelibrary.wiley.com/doi/epdf/10.1111/bld.12443" target="_blank" >https://onlinelibrary.wiley.com/doi/epdf/10.1111/bld.12443</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1111/bld.12443" target="_blank" >10.1111/bld.12443</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Experiences of Mothers of Children with Profound Intellectual and Multiple Disabilities in the Czech Republic

Popis výsledku v původním jazyce

Background: The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods: Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic data were used for data collection. Data analyses were carried out according to Van Manen&apos;s approach, including defining the main themes and description of the lived experiences of mothers. Findings: The dominant themes that emerged from the interviews were (1) losses and limits, (2) increased demands and exhaustion, (3) worries, (4) challenges connected to help and support, (5) transformation, (6) pleasures with contentment of the child and a small development and (7) functional support. Conclusions: The findings demonstrate that mothers of children with profound intellectual and multiple disabilities are at risk of facing many kinds of life difficulties, but the children have also positive impact on the mothers&apos; lives. Relevant professionals and policy makers should be aware of the needs and challenges experienced by this vulnerable population.

Název v anglickém jazyce

Experiences of Mothers of Children with Profound Intellectual and Multiple Disabilities in the Czech Republic

Popis výsledku anglicky

Background: The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods: Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic data were used for data collection. Data analyses were carried out according to Van Manen&apos;s approach, including defining the main themes and description of the lived experiences of mothers. Findings: The dominant themes that emerged from the interviews were (1) losses and limits, (2) increased demands and exhaustion, (3) worries, (4) challenges connected to help and support, (5) transformation, (6) pleasures with contentment of the child and a small development and (7) functional support. Conclusions: The findings demonstrate that mothers of children with profound intellectual and multiple disabilities are at risk of facing many kinds of life difficulties, but the children have also positive impact on the mothers&apos; lives. Relevant professionals and policy makers should be aware of the needs and challenges experienced by this vulnerable population.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

50302 - Education, special (to gifted persons, those with learning disabilities)

Projekt

—

Návaznosti

S - Specificky vyzkum na vysokych skolach

Rok uplatnění

2022

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

British Journal of Learning Disabilities

ISSN

1354-4187

e-ISSN

1468-3156

Svazek periodika

51

Číslo periodika v rámci svazku

1

Stát vydavatele periodika

GB - Spojené království Velké Británie a Severního Irska

Počet stran výsledku

10

Strana od-do

"3 "- 12

Kód UT WoS článku

000751880500001

EID výsledku v databázi Scopus

2-s2.0-85124495715