Social participation of children and adolescents with progressive neuromuscular disease in leisure and school: Theoretical background

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F25%3A73630101" target="_blank" >RIV/61989592:15410/25:73630101 - isvavai.cz</a>

Výsledek na webu

—

DOI - Digital Object Identifier

—

Jazyk výsledku

angličtina

Název v původním jazyce

Social participation of children and adolescents with progressive neuromuscular disease in leisure and school: Theoretical background

Popis výsledku v původním jazyce

The study explores the social participation of children and adolescents with severe progressive neuromuscular diseases (NMD), such as spinal muscular atrophy (SMA) and Duchenne muscular dystrophy (DMD). The aim of the paper is to analyze factors influencing social engagement in this population, identify barriers to their full participation in society, and propose measures to improve their psychosocial functioning. Research findings indicate that support from family, teachers, and peers significantly contributes to increased self-esteem, independence, and overall quality of life. Key barriers to social participation include environmental obstacles, individual differences in disease progression, a lack of understanding of NMD specifics by peers and society, fatigue, low self-esteem, and limited opportunities for leisure activities. The study concludes with recommendations for school practices aimed at fostering social participation, enhancing self-confidence, and promoting the autonomy of children with NMD, enabling them to function effectively in daily life and actively engage in social activities.

Název v anglickém jazyce

Social participation of children and adolescents with progressive neuromuscular disease in leisure and school: Theoretical background

Popis výsledku anglicky

The study explores the social participation of children and adolescents with severe progressive neuromuscular diseases (NMD), such as spinal muscular atrophy (SMA) and Duchenne muscular dystrophy (DMD). The aim of the paper is to analyze factors influencing social engagement in this population, identify barriers to their full participation in society, and propose measures to improve their psychosocial functioning. Research findings indicate that support from family, teachers, and peers significantly contributes to increased self-esteem, independence, and overall quality of life. Key barriers to social participation include environmental obstacles, individual differences in disease progression, a lack of understanding of NMD specifics by peers and society, fatigue, low self-esteem, and limited opportunities for leisure activities. The study concludes with recommendations for school practices aimed at fostering social participation, enhancing self-confidence, and promoting the autonomy of children with NMD, enabling them to function effectively in daily life and actively engage in social activities.

Druh

D - Stať ve sborníku

CEP obor

—

OECD FORD obor

50302 - Education, special (to gifted persons, those with learning disabilities)

Projekt

—

Návaznosti

S - Specificky vyzkum na vysokych skolach

Rok uplatnění

2025

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název statě ve sborníku

cof VIAC 2025

ISBN

978-80-88203-41-4

ISSN

—

e-ISSN

—

Počet stran výsledku

7

Strana od-do

13-19

Název nakladatele

Czech Institute of Academic Education, z.s.

Místo vydání

Prague

Místo konání akce

Virtual

Datum konání akce

28. 8. 2025

Typ akce podle státní příslušnosti

WRD - Celosvětová akce

Kód UT WoS článku

—